Department of Developmental Disability Neuropsychiatry (3DN)

Australian Longitudinal Study of Adults with Autism (ALSAA)

image - Autism CRC Project
Project Members
image - KR Foley
Postdoctoral Research Fellow (on maternity leave)
Ph 02 9385 0620
image - Samuel Arnold
Postdoctoral Research Fellow
Ph +61 (2) 9385 0620
Project Main Description
Researchers at the UNSW and the Autism CRC are seeking volunteer research participants to learn about life in adulthood for people with autism/Asperger’s syndrome.
 
We are looking for adults who are 25 years or older, who have a diagnosis of Autism spectrum disorder/Asperger’s syndrome and/or their main carers to take part in a questionnaire study.
 
 
What does it involve?
 
If you decide to take part, you would:
  • Complete a questionnaire either online or via a paper copy.
  • The questions will be about many aspects of life including mental and physical health, employment and other day occupations, behaviour, emotions, coping, memory, friendships and health service utilisation.
  • Time taken to complete the questionnaires may vary greatly, but the majority may take between 2 to 3 hours. You don’t have to do it all at once.
  • Complete a second questionnaire about two years later if you want to.
 
 
Benefits for adults on the spectrum
 
Currently, understanding of life in adulthood for people with autism is very limited. This has significant implications for the day to day life of individuals on the spectrum with services and the general public lacking in awareness and understanding of the specific needs of people with autism. Results from this study will be shared with individuals with autism, relevant organizations, clinicians, policy-makers and other researchers. We hope the information from this study will help guide the formation of better policies, improved service provision and generally a better understanding of life in adulthood for people with autism. Additionally, the results of this study will be used by other researchers within the Autism CRC to develop interventions and tools which will aim to improve many facets of life for this population.
 
 
If you would like more information or are interested in being part of the study, please follow the link below:
 
 
OR contact us:
 
Kitty Foley and Jane Hwang
(02) 9385 0620
 
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