Department of Developmental Disability Neuropsychiatry (3DN)

The Successful Ageing in Intellectual Disability (SAge-ID) Study

image - SAge ID Logo
Project Members
image - Rebecca Daly   Website
Miss Rebecca Daly
Research Assistant

People with intellectual disability who are over 40 years old can take part in this study about ageing. Carers can also be involved. For more information please download the study flyer below, or call Liz Evans or Rebecca Daly on (02) 9931 9160.


Project Description

People with intellectual disability are living longer, with many living active productive lives. As they age, people with intellectual disability face the same health and mental health issues as the rest of the community, but some will experience these at much younger ages. The SAge-ID Study is looking at the rates of physical and mental health problems in older people with Intellectual Disability. We also hope to learn what things help a person with ID to stay healthy as they age. A focus of the study is the checklists and assessment tools that might be useful for tracking cognitive skills in people with ID, and which tools might be suitable for assessing dementia in people with ID.  
The study has been following up the same group of adults with ID since 2012. We thank the participants, their family members and carers, for their ongoing participation in this valuable project. 
In 2018, we are also recruiting new participants.
You can be in the study if you:
  • Have an intellectual disability
  • Are over the age of 40
  • Have someone who knows you well who can help with completing a survey about you.
The family members of people with ID who are in the study can also choose to participate in a survey about their own health and wellbeing. This is an optional part of the study. 

Our Ambassador for Healthy Ageing: Michael Sullivan

Our study ambassador is Michael Sullivan.  Michael’s role as Healthy Ageing Ambassador for 3DN includes joint advocacy for improved services for older people with ID, as well as giving advice to our research team. Michael is also a co-vice-chairperson at NSW Council for Intellectual Disability. You can read more about him here.
We are glad to have Michael’s input into the study. 

Project funding

The SAge-ID Study has received funding from Ageing, Disability and Home Care, the Dementia Collaborative Research Centers – Assessment and Better Care, La Trobe Rural Health School, and more recently from the National Health and Medical Research Council & Australian Research Council. We thank them for their support. 

Study updates

Click here for our latest study newsletter.


If you would like more information about how you can participate in the study, or have any other questions, please contact us.
Phone: 02 9931 9155 or 02 9385 3994
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