Palliative care Toolkit for people with intellectual disability and supporters

The Toolkit is about palliative care.

A Toolkit is a document with information that helps people to do something.

Palliative care is help for people who have a serious health condition that they will die from.

Palliative care helps people to live well.

Palliative care helps people manage their symptoms like pain or feeling sick.

This Toolkit was made to support people with intellectual disability to get good palliative care.

Making palliative care better is important because people with intellectual disability often find it hard to get good palliative care.

There is different information shared in the Toolkit.

The information could be things like information sheets, planning sheets or videos.

Some of these are in Easy Read.

This Toolkit is in two parts.

Part 1 is for people with intellectual disability. Part 2 is for supporters.

You can download the full toolkit (17MB), or download each part separately.

Supporters are people that help with care or daily life.

This might be friends, family or unpaid and paid carers, for example disability workers.

There is also an Easy Read story about a made-up person called Joe getting good palliative care.

We made resources in Plain English and Easy Read about palliative care for people with intellectual disability and supporters.

This toolkit was made as part of a research project led by 3DN, UNSW Sydney.

We made this toolkit and all other documents with a group of people that included:

3DN is part of the National Centre of Excellence in Intellectual Disability Health. Sign up for news about the Centre's work.

Department of Developmental Disability Neuropsychiatry (3DN)