Researchers at 3DN have launched a pilot study to test and evaluate new information resources to support the tailoring of palliative care for people with intellectual disability. The resources are for people with intellectual disability, their supporters and health professionals.
This project is important because people with intellectual disability are often unable to access palliative care tailored to their needs.
The research team is looking for volunteers to test and give feedback on the resources, including:
- People with intellectual disability (aged 18 years and older) who are accessing palliative care services in South Western Sydney and South Eastern Sydney Local Health Districts, and
- Paid and unpaid supporters (aged 18 years and older) of people with intellectual disability who are accessing palliative care services in South Western Sydney and South Eastern Sydney Local Health Districts.
Findings from this project will inform the development of a national Toolkit to support tailoring of palliative care for people with intellectual disability.
How to volunteer
If you would like to take part in this this project, please see the project study page
- For people in South Western Sydney Health District
- For people in South Eastern Sydney Health District
The page has additional information and Participation Information Sheets.
If you would like to find out more details, please contact our Program Manager, Olivia Burton at idpalliativecare@unsw.edu.au or 02 9348 1732.
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